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Joined 1 year ago
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Cake day: June 13th, 2023

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  • I have autoimmune diseases (thyroid issues and fibromyalgia). Food intolerances go hand-in-hand with autoimmune issues.

    Giving up gluten at the recommendation of a GP and a Endocrinologist made a huge difference, but after about a year I still noticed I had a fair amount of chronic pain and inflammation. So the same endocrinologist recommended I get a Mediator Release Test which helped me identify a long list of other foods that my immune system reacts to badly. Corn is a big one.

    I never had the more obvious gut issues that others in my situation do, but I suppose her nausea could be from food.

    Has she had any traumatic experiences? Anxiety issues? Depression? Things like that are often huge contributors to these problems. Sometimes the problems cause anxiety and depression. I know my pain made me much less healthy mentally, which then made the pain worse.

    I don’t know where in the world you are located, but in the USA at least you can try to find a Doctor of Osteopathic Medicine (DO). They still go to med school, but they focus their application of medical science differently from an MD.


  • I think you’ve mostly gotten the advice I would give from the other responses with respect to taking care of yourself.

    I suffer from back problems and chronic pain. I was unemployed for a long time because of it. I’ve managed to improve, but it took years. So what I’m going to do for her (through you) is to give you a major shortcut to improving her pain and her ability to manage it: She needs to read the book Back In Control by Dr. David Hanscom. Terrible title, but excellent book.

    He’s a back surgeon who went through his own chronic pain, losing his job and a fellowship because of it and eventually becoming suicidal. His book can talk you back from the brink of that. It did for me. Even if she’s not at that point, the book’s advice will help her manage her pain - and her reaction to it - much better.

    Here’s why I know: after reading the book and practicing his simple mental exercises for just a couple of weeks, I already felt remarkably better. This was partly because if even an accomplished surgeon can go through the experience of not having any help from doctors who don’t believe you, then this really isn’t just some personal failing. Doctors just aren’t equipped to properly address chronic pain (with rare exceptions).

    I felt well enough after reading this book that I started looking for a job again. I was still having pain, but the way I experienced it had radically changed. I later discovered that a huge source of my pain was from food intolerances, but this just underscored how badly I had been handling it after suffering through it since I was a child. I had improved without first solving the physical reason for my pain.

    The problem with pain of any sort (including emotional) is that the signals all travel over the same neural pathways, reinforcing and amplifying each other. Emotional pain can be felt in the body at the site of an old (but fully healed) injury. It feels like physical pain though, making it really hard to solve.

    I am NOT saying “this is in her head.” I am saying all pain is actually experienced in the mind, and a mind that’s in distress can inadvertently make it worse and worse over time. Mine did.

    I hope she takes my advice instead of walking the path I did over the course of about 14 years.



  • So basically this is where I’ve landed on this after rooting, moding, etc. all of my electronics for the last 30 years: for devices where I want to customize everything, it’s going to be done with a Linux computer to begin with because there’s absolutely nothing standing in my way. For other things that I just need to work reliably and not become yet another chore, I buy some product. So I would buy a thermostat, but build my own NAS (with a 3D printed 7-bay case).

    I’m beyond sick - as I think you might be too - of all the extra stuff I have to keep up with whenever I jailbreak/root/whatever a device just so I don’t fuck it up with some careless action or update. I just don’t have the same amount of free time and mental energy to dedicate to this stuff anymore. I wish I did though.