A relative has late-ish stage pulmonary fibrosis, needs oxygen in bed, and can’t walk around even with oxygen. He’s getting kicked out of the hospital because they can’t improve him, but he might live another year or two and doesn’t want to pay for hospice. I can’t imagine his wife dealing with all his needs (they’re both in their 70s) but I’ve no idea if there are programs that get him care without leaving his wife destitute. They have a fair nest egg and own their house, but he doesn’t want to ‘waste’ their money on health care. I kinda get it, but also: he needs care.

Anyone know of programs to look at? I’m looking for useful links, but I keep hitting things that either look scammy or like they won’t apply (example: if he is deemed ‘disabled’, doesn’t the govt. basically not care at all until you are broke?)

  • flatbield@beehaw.org
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    10 months ago

    Check but I believe people in home hospice care are instructed to call a hospice number rather then 911 if they do not want life saving care. Maybe someone else knows the details. There are also procedures when someone dies at home. Not sure what they are.

    Just mentioning because best to plan ahead. Hard to think clearly in the moment.